Owen's Journal Entries

This summer brought some big changes for Owen that have us both excited and thinking about the road ahead.

We’re finally sharing a update. Life didn’t slow down after the whirlwind of Owen’s Duchenne diagnosis and treatment, but our bandwidth did.

We’ve learned that Owen has been burdened with something unimaginable this whole time—something that’s been with him since birth.

Owen’s liver enzymes won’t drop, and doctors are worried.

We share Owen's progress through the Delay Intensification phase, our family's adaptation to home-based treatments, and the humbling experiences that have shaped our perspective.

Owen's recent challenges and triumphs, including his recent anaphylactic reaction and ongoing recovery.

Owen’s joyful moments, family support, and bravery shine through as we prepare for the next phase in his leukemia journey.

Owen's birthday shines amidst treatment, as family and friends offer love and support during Interim Maintenance.

Owen completes cancer treatment phase and enter a new one as we brace for next challenges on the horizon

Hard to imagine that it's already been 60 days! Watch what it looks like to have a great Port Placement!

Amid Owen's brave Leukemia fight, a harrowing experience at Riverbend Hospital spotlights the critical need for competent, empathetic care in our journey.

Another day that promised progress, a step closer to healing.

The eve of another medical operation for our brave little warrior

A day of vulnerability and resilience, painting the delicate process of physical and emotional healing for Owen.

Today, we were clinging to the hope for a seamless port placement surgery for Owen without a single hitch.

We travel to Portland for Owen's Port Placement, and we explain why he requires more treatment despite remission.

We are grateful, beyond words, for the love that surrounds us, the strength it gives Owen, and the hope it instills in our hearts.

Physically and emotionally, Owen showed us the brightest side of his spirit today. And we got some great news!

Owen reclaiming pieces of his normalcy with the tenacity of a knight in shining armor.

As one phase ends, a new one starts.

Our sweet boy makes his way back to us through the fog of illness and medication

Owen's second bone marrow and lumbar chemotherapy appointment finally is here.

Each day since has been a journey filled with milestones, challenges, and victories. Today, we celebrate all three.

Here we are, navigating these treacherous waters together, holding hope as our compass.

The specter of what could have been had we chose inaction haunts our quieter moments...

Nana's presence today was not just a help; it was a lifeline.

Now home after weeks in Portland, we grapple with hope and weariness.

Owen's transformation from a picky eater to insatiable due to treatment narrates our family's journey through hope and adaptation.

Emotional day with highs, lows, joy, and gratitude; support uplifts Owen and family.

We reflectson hope and resilience during son's chemotherapy journey as we finally return home!

We find hope and excitement in returning home after battling leukemia.

Cloudy Portland day mirrors our cabin fever; support and hope for Owen's leukemia battle shines.

Casey, Dan, Sam, and fans donate $1,753 to Owen's fund, impacting our life!

We share gratitude amidst Owen's treatment challenges and community support.

Moments of normalcy, medical updates, and a spark of independence amid his leukemia battle.

A day of calm in Owen's journey, marked by support, love, and resilience amidst treatment.

Owen's first chemo outpatient visit; early start, comfort in new hotel, and emotional strength.

Faced tough night at Ronald McDonald, chose Residence Inn for Owen's care.

Owen struggles with pain, we support him during a tough relocation day.

Cloudy day; Owen's first clinic visit post-discharge; family adjusts, finds small victories.

Owen struggled with discomfort, anxiety, and medication; we showed unwavering support amidst challenges.

Owen's first day out of hospital: smiles, side effects, and acts of kindness.

Owen faced chemo bravely, with us providing love and support amid hardships, showing profound gratitude.

Owen's day: laxative effects, 3 pants changes, 2 baths, hearty appetite, gifts, and hopeful discharge.

Family warmth and Owen's progress shine, amidst hospital visits and playful moments.

Hospital stay reveals tough realities; Owen's treatment progresses, small victories celebrated amidst challenges.

Owen's leukemia treatment week shows his resilience, love's strength, and a mix of medical updates.

Owen, battling illness, finds joy in grandpa's video, family visits, and "happy juice."

Family navigates Owen's care, finding strength in support, switching care roles, and community solidarity.

Owen's leukemia treatment shows progress; breathing improves, successful surgery, swelling reduces.

Owen officially diagnosed with B-Cell ALL; faces tough treatment journey but with hope.

Owen's treatment advances with blood transfusion; surgeries set for tomorrow.

Intense day of hope, tests, and a leukemia diagnosis for Owen in Portland.