Owen's Journal

This summer brought some big changes for Owen that have us both excited and thinking about the road ahead.

We’re finally sharing a update. Life didn’t slow down after the whirlwind of Owen’s Duchenne diagnosis and treatment, but our bandwidth did.

We’ve learned that Owen has been burdened with something unimaginable this whole time—something that’s been with him since birth.

Owen’s liver enzymes won’t drop, and doctors are worried.